Let’s Make Lupus Visible
May 10th is World Lupus Day.
Lupus is a chronic autoimmune disease that can affect anyone at anytime and any organ in your body (skin, joints, kidneys, brain, and other organs). There is no single test available to diagnose Lupus. There is currently no cure for it, only medications to manage symptoms.
When I was diagnosed with Systemic Lupus Erythematosus (SLE) in 2019, it changed my life. I had to give up some of my dreams. I had to learn how to live with a disability. I had to learn how important it is to listen to my body. I had to learn that it’s okay if all I do for a day is breathe. A few months later, I also developed Lupus Nephritis which means Lupus in the kidneys (in addition to SLE). I had to go through chemotherapy for it to avoid getting a kidney transplant. Praise the Lord the chemo worked to calm the Lupus Nephritis down. But it doesn’t mean I’m 100% cured and it could come back. We have to keep it stable with maintenance medication. I’m doing rehab now to get my strength and endurance back. It’s been quite a journey.
A great support system is what helped me through this journey. Would you continue to fight with me today and for the month of May to raise awareness for Lupus? Put on something purple, take the time to educate yourself about Lupus, donate to @lupuscanada , and/or ask me anything you’d like to know about what it’s like living with Lupus. Together, let’s #makelupusvisible